Now that I know about this, I noticed that one of the ads for a drug (I think for the treatment of plaque psoriasis) warns that PML is a rare side effect. Read at the speed of TV ad drug warnings, it has the effect of implying "but no one thinks you're going to get it, we just have to mention it in passing."
Talking to some oncologists sounds like the best way to get some solid information. If 10% of leukemia patients succumb to PML (I think this would be more broadly known if it were true) that's one thing. If .02% do, that's a very different thing. My brother-in-law--who had a cancer other than leukemia that was treated with this immune-system reboot--is alive and thriving. Anecdotal evidence proves nothing, but I'm curious to know whether PML was even a factor in his discussions with his doctors.
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Date: 2016-08-16 02:36 pm (UTC)Talking to some oncologists sounds like the best way to get some solid information. If 10% of leukemia patients succumb to PML (I think this would be more broadly known if it were true) that's one thing. If .02% do, that's a very different thing. My brother-in-law--who had a cancer other than leukemia that was treated with this immune-system reboot--is alive and thriving. Anecdotal evidence proves nothing, but I'm curious to know whether PML was even a factor in his discussions with his doctors.
Let us know what you learn.