klwilliams: (Karen passport photo)
[personal profile] klwilliams
I asked Helen, Chaz's good friend who happens to be an NHS doctor, to check with a teaching hospital in the UK that has tested using a leukemia treatment to cure MS. Would they treat an American, outside of a study? It turns out that yes, they would, if I pass their preliminary tests.

Um.

They sent a letter with a list of what they need to know (and how much it will cost, though the pound was at $1.325 yesterday, so that's something). I about to call to get an appointment with my neurologist.

I could barely sleep last night. My head is spinning, making plans. Because if I just have a plan I won't freak out. Entirely.

Date: 2016-08-01 06:31 pm (UTC)
From: [identity profile] swan-tower.livejournal.com
Because if I just have a plan I won't freak out. Entirely.

I know EXACTLY what you mean.

Date: 2016-08-01 06:58 pm (UTC)
From: [identity profile] pennski.livejournal.com
Fingers knees and toes crossed for you.

Date: 2016-08-01 07:07 pm (UTC)
From: [identity profile] lifeofglamour.livejournal.com
Fingers crossed for you!!

Date: 2016-08-01 08:13 pm (UTC)
From: [identity profile] rachelmanija.livejournal.com
Fantastic! I so hope you get in and it works.

Date: 2016-08-01 08:57 pm (UTC)
From: [identity profile] rustmon.livejournal.com
I am crossing all of the US for you! Luck!!!!! <3

Date: 2016-08-01 09:45 pm (UTC)
From: [identity profile] cvirtue.livejournal.com
Sounds promising! Good luck!

Date: 2016-08-01 09:51 pm (UTC)
From: [identity profile] ppfuf.livejournal.com
Wow, that's amazing. GM's brother underwent a similar nuke-it-from-orbit then regrow-from-clean-cells chemotherapy in a last ditch effort to cure his leukemia. Looks like science has gotten better on the regrowth part in the past few years. :)
Good luck, and I hope your plan comes together!

Date: 2016-08-01 10:29 pm (UTC)
From: [identity profile] klwilliams.livejournal.com
It's the leukemia chemo. I'm in better shape than most leukemia patients, though, since MS is just a slow paralysis (which eventually leads to death, just...slowly). I've heard the science is better on the liver toxicity front, though.

Date: 2016-08-01 10:49 pm (UTC)
From: [identity profile] sartorias.livejournal.com
Oh, wow fingers crossed!!!!

Date: 2016-08-02 12:01 am (UTC)
From: [identity profile] hrj.livejournal.com
Nothing quite like the treatments that amount to, "Jump off this cliff and you may grow wings before you hit the valley floor." And yet...we really do live in a science-fictional world with regard to medicine. (*turns back to day job involving industrial production of biologicals that have been edited at the molecular level*)

Date: 2016-08-02 12:12 am (UTC)
From: [identity profile] branna.livejournal.com
Fingers crossed for you!

Date: 2016-08-02 01:08 am (UTC)
From: [identity profile] athenais.livejournal.com
Hoping your plans come together!

Date: 2016-08-02 02:14 am (UTC)
From: [identity profile] acanthusleaf.livejournal.com
Such an incredible opportunity! So excited for you!

Date: 2016-08-02 03:04 am (UTC)
From: [identity profile] shutt3rg33k.livejournal.com
This is fantastic news! I hope it all works out and you get cured. <3

Date: 2016-08-02 03:07 am (UTC)
From: [identity profile] tiger-spot.livejournal.com
Oh, good luck!

Date: 2016-08-02 02:44 pm (UTC)
madrobins: It's a meatloaf.  Dressed up like a bunny.  (Default)
From: [personal profile] madrobins
This would be so amazing...

Date: 2016-08-02 03:53 pm (UTC)
From: [identity profile] deborahjross.livejournal.com
Many prayer wheels spinning for the best possible outcome!

Date: 2016-08-02 10:39 pm (UTC)
julesjones: (Default)
From: [personal profile] julesjones
Best wishes for this.

Date: 2016-08-03 07:13 am (UTC)
From: [identity profile] mevennen.livejournal.com
Karen, really best wishes with this.

Date: 2016-08-04 07:06 am (UTC)

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