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It occurred to me that since the MS cure is actually a well understood chemotherapy used for leukemia patients, oncologists who treat leukemia would understand the risks vis-a-vis something like the JC virus/PML. Do oncologists check for that? Do their patients develop PML?
So I've asked my neurologist and our doctor friend Helen these questions, and I'll see what answer I get back. Since I've never heard of leukemia patients dying of incurable brain infections (not that I necessarily would), I'm feeling better about that.
So I've asked my neurologist and our doctor friend Helen these questions, and I'll see what answer I get back. Since I've never heard of leukemia patients dying of incurable brain infections (not that I necessarily would), I'm feeling better about that.
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Date: 2016-08-15 10:35 pm (UTC)Onward!
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Date: 2016-08-15 10:38 pm (UTC)no subject
Date: 2016-08-16 04:49 am (UTC)no subject
Date: 2016-08-16 02:36 pm (UTC)Talking to some oncologists sounds like the best way to get some solid information. If 10% of leukemia patients succumb to PML (I think this would be more broadly known if it were true) that's one thing. If .02% do, that's a very different thing. My brother-in-law--who had a cancer other than leukemia that was treated with this immune-system reboot--is alive and thriving. Anecdotal evidence proves nothing, but I'm curious to know whether PML was even a factor in his discussions with his doctors.
Let us know what you learn.